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The criminal AML patient
One patient told us about his experience of feeling like a criminal while being in isolation at his treating hospital. "It's like wearing a foot chain. You feel like a criminal being punished".
Your key takeaway:
Helping AML patients find new ways to cope with the physical and mental aspect of isolation can truly improve their experience.
That cutlery can become part of the cure:
One of the relatives in the research would go to see her husband daily while he was hospitalized. Every day, she would spend hours cooking before leaving the house and she would even bring her own cutlery to the hospital; “I brought him all the food, it was also our cutlery from home that he was using. Then it felt as much like home as possible”.
Your key takeaway:
Supporting the patients relationship with their relatives can give them strength and energy to handle their “new normal”
How one blue dot can make the doctor better understand a patient
One of the participating doctors explained about an episode with a patient who had illustrated her life on a piece of paper by drawing white dots all over the page. In the middle of the page, there was one blue dot, that symbolized her meeting with the doctors and the hospital. “That was very important to me, because we think we are so important, but for the patients we are just one part”.
Your key takeaway:
Identifying new ways to bridge the understanding of the patients life outside the hospital with their treatment inside the hospital is valuable in a treatment strategy.
When avoiding the woods can be a strategy:
A patient told how she had heard her doctor advise her not to go into the woods in her neighborhood, as it could be dangerous for her condition because of the possible of getting infected by bacteria. This fear of bacteria however also affected how the patient viewed upon her neighbors as they often wandered around in woods. “When my neighbours stopped by, I wouldn't let them in and I wouldn't hug them".
Your key takeaway:
Patients needs help and information to handle three aspects of isolation: Social isolation. Physical isolation. Fear of no isolation.
Doctors working for weddings:
The interviews with the doctors showed that the patients were not viewed as sick bodies that needed treatment, but much more like persons whom you would build relationships with. The most doctors follow their AML patients for years – and many even longer than what the healthcare system suggests. Some of these doctor-patient relations grow into strong and lifelong friendships:   “Five years we follow people obligatory, but some people have the wish to come for more years to feel safe. I’ve made many friends like that, I have many patients who even come to my home, and I go to their weddings. It feels nice to do something nice”.    
Your key takeaway:
If it’s possible to treat the relationship with the patient as a strong alliance early on in the process, it can be a mutual advantage.
We are more than happy to come to your clinic and present the findings and results from the research to you and your colleagues and discuss the potentials of the insights. To hear more about the presentation and discuss a meeting format that may be suitable at your clinic, please enter your details beside, and a representative from Astellas will contact you by phone to schedule a meeting.
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